Even though hundreds of numerous individuals in the world Are living with hearing loss that is defined as disabling, Aissam is amongst All those whose deafness is congenital. His is an especially exceptional kind, caused by a mutation in a single gene, otoferlin. Otoferlin deafness has an effect on about two hundred,000 persons worldwide.
Aissam’s trial is among five that are possibly underway (the Many others are in China and Europe) or going to start off.
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